In an effort to support the estimated 30 million Americans facing rare diseases, the National Organization for Rare Disorders (NORD) recently launched a new awareness effort challenging people to pledge dollars for walking, running or biking 7,000 miles throughout the month of February.
NORD's 7,000 Mile Rare Movement will kick off Feb. 1 and run through the end of the month. The event is designed to help raise funds for research grants, patient services and education for those suffering with rare diseases, a NORD release said.
"We are inviting everyone – families, friends, advocates, patients and the general public – to join us in actively raising awareness and funds through our new 7,000 Mile Rare Movement,” NORD President and CEO Peter Saltonstall said in the release. “Our hope is that together, we challenge the community to do something new and different and get involved to make a tangible impact for the 30 million Americans dealing with a rare disease today.”
Participants in the 7,000 Mile Rare Movement can create a PLEDGEIT profile online at pledgeit.org/give/nord and begin tracking their miles as an individual or part of a team, the release said. They then can share the information with family, friends, co-workers and employers to request pledges and support. Registrants can also purchase a participation pack with a T-shirt, commemorative medal and bracelet to wear on Rare Disease Day, Feb. 28.