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National Organization for Rare Disorders (Nord)
Marian Johns | Jan 18, 2018

National Organization For Rare Disorders encouraging participation in 7,000 mile effort to raise awareness
Marian Johns | Nov 16, 2017

Patient groups say Orphan Drug Tax Credit repeal could result in fewer treatments for rare diseases
Russell Boniface | Sep 13, 2017

FDA approves first gene therapy for leukemia
Keri Carbaugh | Dec 28, 2016

Rare disease forces family to leave state for better care
Jeff Gantt | Dec 16, 2016

NORD RAN releases second state report on rare diseases
Keri Carbaugh | Dec 9, 2016

House representatives pass National Defense Authorization Act
Amanda Rupp | Nov 12, 2016

Novel study launches for FD/MAS
Amanda Rupp | Oct 5, 2016

Keynote speakers announced for 2016 Rare Diseases and Orphan Products Breakthrough Summit

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Patient Daily | Sep 3, 2025

Top healthcare marketing experts to present at AOCOO-HNS 2025 virtual mid-year symposium, led by Greg Caesar of Medfluence Advisors
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Patient Daily | Sep 4, 2025

PhRMA CEO on 340B abuse: ‘Big hospitals are abusing the 340B program to markup medicine prices’
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Patient Daily | Sep 2, 2025

Fmr. Gov. Dean on 340B: ‘There's no actual requirement for hospitals to pass along the savings’
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Patient Daily | Aug 29, 2025

Deputy VP of Public Affairs of PhRMA on 340B: ‘Over 80% of all rural hospital beds were actually in urban hospitals’