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National Organization for Rare Disorders (Nord)

Marian Johns | Jan 18, 2018

National Organization For Rare Disorders encouraging participation in 7,000 mile effort to raise awareness

Marian Johns | Nov 16, 2017

Patient groups say Orphan Drug Tax Credit repeal could result in fewer treatments for rare diseases

Russell Boniface | Sep 13, 2017

FDA approves first gene therapy for leukemia

Keri Carbaugh | Dec 28, 2016

Rare disease forces family to leave state for better care

Jeff Gantt | Dec 16, 2016

NORD RAN releases second state report on rare diseases

Keri Carbaugh | Dec 9, 2016

House representatives pass National Defense Authorization Act

Amanda Rupp | Nov 12, 2016

Novel study launches for FD/MAS

Amanda Rupp | Oct 5, 2016

Keynote speakers announced for 2016 Rare Diseases and Orphan Products Breakthrough Summit

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Patient Daily | May 8, 2025

Pacific Research Institute CEO: Hospitals are leveraging 340B's 'perverse incentives to enrich themselves'

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Turning Point USA founder: 'Big pharma’s lobbying of Washington DC has long allowed them to price gouge Americans'

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