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National Organization for Rare Disorders (Nord)
Marian Johns
| Jan 18, 2018
National Organization For Rare Disorders encouraging participation in 7,000 mile effort to raise awareness
Marian Johns
| Nov 16, 2017
Patient groups say Orphan Drug Tax Credit repeal could result in fewer treatments for rare diseases
Russell Boniface
| Sep 13, 2017
FDA approves first gene therapy for leukemia
Keri Carbaugh
| Dec 28, 2016
Rare disease forces family to leave state for better care
Jeff Gantt
| Dec 16, 2016
NORD RAN releases second state report on rare diseases
Keri Carbaugh
| Dec 9, 2016
House representatives pass National Defense Authorization Act
Amanda Rupp
| Nov 12, 2016
Novel study launches for FD/MAS
Amanda Rupp
| Oct 5, 2016
Keynote speakers announced for 2016 Rare Diseases and Orphan Products Breakthrough Summit
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Community
Patient Daily
| Mar 14, 2025
Doctor on weather-related pressure headaches: This could happen 'if you have an underlying chronic sinus disease'
C.D. Marsden
| Mar 14, 2025
Solidarity Health to Musk, RFK, Jr: ‘Enforce the CMS Hospital Price Transparency Rule’
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Marketing
Patient Daily
| Mar 14, 2025
Founder of Medfluence Advisors on healthcare marketing: 'The patient journey is more complex than ever'
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Pharmaceuticals
Patient Daily
| Mar 13, 2025
Mayo Clinic partners with KYAN Technologies for U.S. cancer testing expansion
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