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National Organization for Rare Disorders (Nord)
Marian Johns
| Jan 18, 2018
National Organization For Rare Disorders encouraging participation in 7,000 mile effort to raise awareness
Marian Johns
| Nov 16, 2017
Patient groups say Orphan Drug Tax Credit repeal could result in fewer treatments for rare diseases
Russell Boniface
| Sep 13, 2017
FDA approves first gene therapy for leukemia
Keri Carbaugh
| Dec 28, 2016
Rare disease forces family to leave state for better care
Jeff Gantt
| Dec 16, 2016
NORD RAN releases second state report on rare diseases
Keri Carbaugh
| Dec 9, 2016
House representatives pass National Defense Authorization Act
Amanda Rupp
| Nov 12, 2016
Novel study launches for FD/MAS
Amanda Rupp
| Oct 5, 2016
Keynote speakers announced for 2016 Rare Diseases and Orphan Products Breakthrough Summit
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Community
Patient Daily
| Apr 17, 2025
ENT Practice Expert: OTO Forum 2025 will feature 'at least four topics that stand out as vital for doctors'
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Pharmaceuticals
Patient Daily
| Apr 17, 2025
UCSF neurosurgeon: 'The idea that 340B is about helping the poor is a fiction'
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Pharmaceuticals
Patient Daily
| Apr 22, 2025
National Consumers League CEO: 340B program abuse is 'a financial bonanza for non-profit hospitals'
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Pharmaceuticals
Patient Daily
| Apr 23, 2025
State Sen. Baldacci: 340B reform ‘could help hospitals alone to the tune of 50 to 70 million per year'
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