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National Organization for Rare Disorders (Nord)
Marian Johns
| Jan 18, 2018
National Organization For Rare Disorders encouraging participation in 7,000 mile effort to raise awareness
Marian Johns
| Nov 16, 2017
Patient groups say Orphan Drug Tax Credit repeal could result in fewer treatments for rare diseases
Russell Boniface
| Sep 13, 2017
FDA approves first gene therapy for leukemia
Keri Carbaugh
| Dec 28, 2016
Rare disease forces family to leave state for better care
Jeff Gantt
| Dec 16, 2016
NORD RAN releases second state report on rare diseases
Keri Carbaugh
| Dec 9, 2016
House representatives pass National Defense Authorization Act
Amanda Rupp
| Nov 12, 2016
Novel study launches for FD/MAS
Amanda Rupp
| Oct 5, 2016
Keynote speakers announced for 2016 Rare Diseases and Orphan Products Breakthrough Summit
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Technology/Innovation
Patient Daily
| May 8, 2025
Medfluence attends 2025 Annual Clinical Assembly as only strategic marketing firm
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Technology/Innovation
Patient Daily
| May 7, 2025
OTO Forum 2025 highlights innovation in ENT
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Pharmaceuticals
Patient Daily
| May 8, 2025
Pacific Research Institute CEO: Hospitals are leveraging 340B's 'perverse incentives to enrich themselves'
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Regulatory
Patient Daily
| May 12, 2025
Turning Point USA founder: 'Big pharma’s lobbying of Washington DC has long allowed them to price gouge Americans'
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