The ALS Association has joined the Muscular Dystrophy Association and the Les Turner ALS Foundation in opposing a plan that would eliminate federal funding for the Centers for Disease Control and Prevention's National ALS Registry.
An ALS Association press release said President Donald Trump has proposed a budget for 2018 that calls for removing funds for the National ALS Registry at the CDC. All three organizations have taken the stance that taking away those funds would get in the way of moving forward with finding more information about ALS and how the disease happens.
All three organizations also hold that removing the federal funds for the National ALS Registry would prevent people suffering from ALS from having easy access to many clinical trials and epidemiological studies, the release said. The three organizations also hold that taking away the funding would inhibit those studying the disease from getting important data that would help them learn trends of the disease.