Noting one patient’s observation that “no matter what I'm going through with lupus … chances are that someone online has also …,” the Lupus Foundation of America (LFA) recently expanded its support system, establishing the online LupusConnect.
Joanna Mechlinski, who made that observation in summing up the new program’s value, added that she can now find advice or empathy “within moments” and taking advantage of the foundation’s newest networking tool, a LFA release said.
To launch the platform, LFA collaborated with Inspire, a firm committed to connecting patients, families, friends and caregivers in “the social health care space,” the release said. Inspire CEO Brain Loew expressed excitement with the partnership, saying his company is “thrilled” to work with LFA and takes pride in enhancing research and support, the release said.
“No matter how isolated lupus can make people feel, LupusConnect offers people the opportunity to express their fears, frustrations, and hopes with others who understand lupus firsthand,” LFA CEO Sandra Raymond said in the release. “We are excited to partner with Inspire and to continue our commitment to providing people impacted by lupus with access to high-quality resources and support services.”