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National Organization for Rare Disorders (Nord)
Gabriella Ayres | Jan 21, 2016

NORD introduces Patient/Caregiver Speakers Bureau for rare diseases
Jamie Barrand | Jan 16, 2016

FDA invites patient organizations to hold PFDD meetings
Jamie Barrand | Jan 8, 2016

FDA approves record number of orphan drugs in 2015
Jamie Barrand | Dec 31, 2015

Cure HHT Foundation dedicated to spreading awareness about rare blood disorder
Jamie Barrand | Dec 29, 2015

Omnibus spending bill includes funding for rare disease research
Jamie Barrand | Dec 12, 2015

FDA grant to fund NORD rare disease studies
Jamie Barrand | Nov 20, 2015

NORD backs Robert Califf as next FDA commissioner

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Patient Daily | Aug 12, 2025

Capitol Breathe Free Otolaryngologist on air quality and pollution: ‘These are common triggers for sinus inflammation and sinus infections’
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Patient Daily | Aug 18, 2025

Patients Come First spokesperson on 340B rebate model: ‘This rebate model provides the oversight that 340B has needed for decades’
Patient Daily | Aug 18, 2025

Medfluence Advisors’ Greg Caesar to open ASCENT 2025 with keynote on digital practice growth
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Patient Daily | Aug 14, 2025

Founder of Policy Candy: '340B must see comprehensive reforms'