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National Organization for Rare Disorders (Nord)
Gabriella Ayres
| Jan 21, 2016
NORD introduces Patient/Caregiver Speakers Bureau for rare diseases
Jamie Barrand
| Jan 16, 2016
FDA invites patient organizations to hold PFDD meetings
Jamie Barrand
| Jan 8, 2016
FDA approves record number of orphan drugs in 2015
Jamie Barrand
| Dec 31, 2015
Cure HHT Foundation dedicated to spreading awareness about rare blood disorder
Jamie Barrand
| Dec 29, 2015
Omnibus spending bill includes funding for rare disease research
Jamie Barrand
| Dec 12, 2015
FDA grant to fund NORD rare disease studies
Jamie Barrand
| Nov 20, 2015
NORD backs Robert Califf as next FDA commissioner
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Technology/Innovation
Patient Daily
| May 8, 2025
Medfluence attends 2025 Annual Clinical Assembly as only strategic marketing firm
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Technology/Innovation
Patient Daily
| May 7, 2025
OTO Forum 2025 highlights innovation in ENT
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Pharmaceuticals
Patient Daily
| May 8, 2025
Pacific Research Institute CEO: Hospitals are leveraging 340B's 'perverse incentives to enrich themselves'
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Regulatory
Patient Daily
| May 12, 2025
Turning Point USA founder: 'Big pharma’s lobbying of Washington DC has long allowed them to price gouge Americans'
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