Autism Speaks and the Data Resource Center for Child and Adolescent Health have partnered and developed a new interactive data portal, which is called Pathways to Diagnosis and Services.
The goal is to make statistics about autism come to life. Now, autism statistics and resources are easily accessible and applicable to people and their families.
“Our goal for the new Experience Matters autism chart book is to provide a comprehensive portrait of the rich and complex experiences of children and families with autism,” Christina Bethell, director of the Child and Adolescent Health Measurement Index, said. “We are struck by the stories told by the data -- of resilience, family impact, health equity and opportunities for improving community systems of care and well-being for these children and their families.”
With the interactive information portal, the partners have written a book to emphasize the ways that the Pathways portal has been useful to people with autism as well as the autism community at large.
“The purpose of this project is to make high-quality, national autism research data easy to access and even easier to use for researchers, policy makers, advocates and even families," Michael Rosanoff, Autism Speaks director for public health research, said. “After all, what good is autism research data if only few can accesses it and even fewer know how to use it?”