LUPUS Foundation of America issued the following announcement on July 11.House Committee Approves Funding of Critical Lupus Programs House Appropriations Committee Chairman Rodney Frelinghuysen (R-NJ) with lupus advocates.
Noting one patient’s observation that “no matter what I'm going through with lupus … chances are that someone online has also …,” the Lupus Foundation of America (LFA) recently expanded its support system, establishing the online LupusConnect.
After a decade of advocating research about the impact of lupus on military service, the Lupus Foundation of America recently announced the creation of a research program at the U.S. Defense Department, made possible by a $5 million endowment authorized by Congress this year.
Lupus patient advocates are planning to hold the Lupus Patient-Focused Drug Development (PFDD) Meeting, titled Lupus: Patient Voices, on Sept. 25 in the Washington, D.C., area, a release on the Lupus Foundation of America website said.
Despite a history riddled with setbacks, lupus researchers may now be able to construct more effective clinical trials following the published results of a collaboration in drug product development, the Lupus Foundation of America said in a recent release.
The Research.forME Lupus Registry was recently launched to give those living with lupus and their caregivers the opportunity to share their experiences and locate new information on research and treatments, the Lupus Foundation of America said in a release.
For one fortnight, Americans can bolster the Lupus Foundation of America’s crowdfunding campaign to 'Cut It Out,' a concerted nationwide effort designed to stem the devastating effects of the autoimmune disease.
The Department of Health and Human Services’ (HHS) Office of Minority Health (OMH) recently informed the Lupus Foundation of America that there is a new grant to improve the rate of minority participants involved in lupus clinical trials.