ALS patient becomes advocate for ALS community at large
Kevin Gosnell, founder of T&K Asphalt, is on a mission to fight ALS.
Living with ALS himself, Gosnell started ALS One, which is designed to bring together leading experts in the field of neurology to work on a cure for the disease.
He hopes that, with the help of researchers and care providers in Massachusetts, the disease can be beat within four years.
"My nana Gosnell always said, ‘many hands make light work' -- and as a small business CEO, I've lived by these words and always believed in the power of a team," Gosnell said. "When I was diagnosed with ALS last spring, I was disheartened by the lack of collaboration in the field of ALS and decided to dedicate my remaining time to leverage my business and leadership skills to help build a team of the top ALS experts here in Massachusetts, the medical hub of the world, to expedite progress toward finding a treatment."
When Gosnell was diagnosed with the disease, he immediately noticed that the community lacked vision, cohesiveness and money. He is now using his business acumen and leadership skills to bring the community together to fight the disease.
"ALS is an extremely underfunded disease in two areas: care and research," Dr. Merit Cudkowicz, professor of neurology at Harvard Medical School, said. "ALS patients need more access to clinics, technology and care services to ensure they can live their best life. We are on the cusp of research breakthroughs, and infusion money will help us find an effective treatment. Through ALS One -- working together with Bob Brown and his team at UMass Medical School, alongside Steve Perrin and his team at ALS Therapy Development Institute and Ron Hoffman of CCALS -- we are confident that we will accelerate progress to find a treatment and improve care for the ALS community."
Organizations in this story
ALS Association 1275 K Street Northwest Washington, DC - 20005